I received an e-mail this morning about the "Will to Live" document. I had heard of the document, but hadn't really thought anything about it. She asked some good questions so I thought I'd just post the e-mail and see what others thought. I'm sure, when I have time, that I'll do some research on the whole thing, but at this point don't know enough to say anything educated on the subject.
Here are parts of the e-mail:
I am wondering if you could launch a discussion on your blog, of the "Will to Live" document that the Right to Life coalition is promoting as an alternative to Living Wills. Many articles appearing in Catholic publications and in the Hospice Patients Alliance newsletter, introduce the document after first talking about the incidence of euthanasia in hospice. If you haven't seen the form, state specific versions are available at their website: www.nrlc.org.
As an end-of-life planning document, it's actually pretty comprehensive, and addresses many specific situations that patients could find themselves in. However, one clause, is troubling, and from my perspective would make it impossible to admit a patient to hospice.
I direct that the following be provided:
* the administration of medication;
* cardiopulmonary resuscitation (CPR); and
* the performance of all other medical procedures, techniques and technologies necessary to correct, reverse, alleviate life-threatening or health-impairing conditions, or complication arising from those conditions.
In my mind, patients signing this document, would be opting for curative treatment, not hospice care. I'm wondering whether any of your readers have had prospective patients present this document, and how they handled the situation.
I have a relative who is very active in the RTL movement, and who is an ardent follower of everything that the Hospice Patients Alliance puts out. He is very opposed to hospice. He worked on an article that appeared in a Catholic publication that recommended that Catholics sign the Will to Live. In fact in many Catholic publications, readers are being advised that they would be out of communion with the Church, and in a state of sin, if they signed a Living Will. When I pointed out patients signing this document would likely be ineligible for hospice care, he replied, "That's the point." No where are readers being advised that this document would make them ineligible for hospice care.
I suspect we're going to be seeing this document more and more, and I think a discussion would be productive.
My gut says that the clauses the e-mail noted do not make it impossible for people to go on hospice, but they do make it harder. The majority of hospice patients go on hospice because there is no aggressive treatment available. This document seems to be saying that if there is something that can be done to cure me, then I want that done. To be honest, it's rare to find a person who doesn't feel that way. The question is what you do when you don't have any more options. This document keeps someone who has options from receiving hospice, but doesn't address (in the e-mail version at least) what to do when there are not other "aggressive" options.
My last note is that I think the claim that there is a lot of euthanasia in hospice is a crock. That's all I have to say about that, because I can't prove my stance just like others can't prove that there is a lot of it going on. It's something that people with an agenda say to scare people, and does nothing but keep people who do need help from getting it.
Wednesday, June 22, 2005
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12 comments:
There are Catholics whom my grandmother used to call "more Catholic than the Church" meaning that they made up their own rules which had no basis in Catholic theology.
Recommending that dying people demand CPR falls under that heading.
So does insisting that every last possible step be taken to keep the heart beating when it is pointless.
Actual Catholic teaching is that it is not required to accept treatments or technologies which are "overly burdensome" especially if they are of limited benefit. I read a lot of Catholic periodicals, but apparently none in which this particular document has been published. This makes me suspect that it's not being published in particularly mainstream magazines.
I'm a doc who takes care of lots of dying people & I just wanted to reiterate that virtually no euthanasia takes place in hospices in the US. The aim of the hard core & so-called 'right to life'-ers is to mislead, bully, and scare people of faith. Why they are taking on hospice is anyone's guess, but it seems that honoring patients' (with, for instance, metastatic and incurable cancer) wishes not to die in a hospital with some stranger pounding on their chest smacks too much of 'the culture of death' for them. Keep up the good posts, Hospice Blogger
I agree that the accusations of euthenasia in hospice are made to scare the uniformed. I am sure that any organization that was motivated to find and expose euthenasia could do it, with undercover nurses, for example. The resulting publicity would be explosive.
If they could have done, they would have.
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